Dominique Maraninchi : "Cancer research: the partnership between the INCa and ASIP Santé"

Points de vue | 20 May 2010
The view of Dominique Maraninchi (INCa)
In cancer research, the complexity of care paths and the high number of healthcare professionals involved mean improved coordination between these professionals is necessary to better support the patient during and after treatment. 
Dominique MaraninchiThe 2009-2013 cancer strategy was launched by the French president on 2 November 2009. Its objectives include the development of tools for coordinating and sharing information between hospital clinicians and general practitioners, and the establishment of a joint action plan between the INCa and ASIP Santé. The aim is to develop the use and services of the shared oncology record (DCC) within the context of the deployment of the electronic health record (DMP). The relaunch programme for the DMP and for shared health information systems was presented by the Minister for Health in April 2009. Against this backdrop, the INCa and ASIP Santé signed a partnership agreement on 9 December 2009 to develop the DCC.

Optimizing the service provided to practitioners

This announcement was made during a national meeting of the regional cancer research networks (RRC), which are managing the DCC project at regional level. The sharing of medical data between healthcare professionals is covered in clause 18.3 of the cancer strategy, which has several sections: formalizing and testing the minimum content of the summary discharge letters addressed to the doctor in charge; deploying the DCC within the framework of the relaunch of the DMP; and drafting tailor-made specifications and a programme of action. 
As part of the DMP and shared health information systems relaunch programme, it is planned that the DCC will be included as a DMP service. To this end, the INCa and ASIP Santé have decided to pool their resources in order to optimize the service provided to healthcare professionals, including the doctor in charge, who use this information. Employing the DCC will eventually offer each patient the possibility of personally accessing data from, among other things, multidisciplinary consultations, anatomopathology reports, surgical reports, and discharge letters.
The discussions between ASIP Santé and the INCa have also given rise to the option of establishing an information system for regional networks, to manage the tools and services needed in cancer research (in particular, directories of multidisciplinary consultations, creating personalized care programmes, access to clinical practice recommendations and test registries, etc).
A joint INCa/ASIP Santé framework document on the development of the DCC and DMP will be published in the first quarter of 2010.
Dominique Maraninchi, President of the French national cancer institute (INCa).